Connecting Fanconi Anemia Patients and Professionals across Europe
Welcome to FA Europe!
FA Europe is an initiative of Fanconi Hope in the UK and the Fanconi Anemie Werkgroep of the VOKK Nederland. It is an umbrella organisation connecting patient support groups, clinicians, scientists and FA patient representatives from across Europe, whose collective voice, reach and influence should be greater than that of the individual organisations. We want all European countries to have the opportunity to be involved in the management and running of the organisation.
- Our Vision: Equal access to optimised care for people across Europe affected by Fanconi Anemia.
- Our Mission: We aim to achieve this by connecting FA patients, doctors and scientists across Europe and acting as a facilitator for education and communication, fundraising, research collaboration and sharing of best practices and infrastructure.
Please help us to improve the lives of people living with Fanconi Anemia by making a donation to the FA Europe Network
European FA Virtual Tumor
Advisory Board (EFA VTAB).
- Need Expert Advice? If you are a healthcare professional treating a patient with FA who has a head or neck cancer SCC diagnosis and you would like expert advice.
- Willing to share your expertise and become a member of the EFA VTAB?
Read more about the EFA VTAB – how to request advice and how to join the Board.
FA Europe Scientific Meeting 2025
Following on from the success of the 2024 Scientific Meeting in Paris with 92 attendees, the 2025 meeting is to be held at the Gaslini Institute in Genoa 22/5 – 23/5 2025.
Latest News
FA Europe Scientific Meeting 2025 – Registration Now Open!
Registration for the FA Europe Scientific Meeting at the Gaslini Academy in Genoa on May 21 and 22, 2025 is now open! Further details and Registration here
FA Europe Scientific Meeting Presentations
You can now download the Agenda and most presentations from the FA Europe Scientific Meeting in Paris on May 24th 2024 by going to the Previous Event Reports Page. Here is Professor Eliane Gluckman giving the keynote address – a Historical Perspective in Fanconi Anaemia.
First Face to Face Meeting of FA Europe Patient Support Group Representatives!
First Face to Face Meeting of FA Europe Patient Support Group Representatives! On the weekend of November 4-6 the FA Europe Network held its first meeting where everyone came together face to face for the first time! This event was comprised of representatives from 10 European FA Patient Support Groups. These groups represented Denmark, France,
FA Europe Webinar 9th April 2021 Videos now available to view
FA Europe Webinar: 9th April 2021 – Toward improved management of head and neck cancer in Fanconi Anemia patients. Meeting Chair: Prof Ruud Brakenhoff, Co-chair: Prof Remco de Bree. Videos of the event can be found here
Countries with FA Support Groups
Key
- Countries with FA Support Groups