Connecting Fanconi Anemia Patients and Professionals across Europe

Welcome to FA Europe!

FA Europe is an initiative of Fanconi Hope in the UK and the Fanconi Anemie Werkgroep of the VOKK Nederland. It is an umbrella organisation connecting patient support groups, clinicians, scientists and FA patient representatives from across Europe, whose collective voice, reach and influence should be greater than that of the individual organisations. We want all European countries to have the opportunity to be involved in the management and running of the organisation.

  • Our Vision: Equal access to optimised care for people across Europe affected by Fanconi Anemia.
  • Our Mission: We aim to achieve this by connecting FA patients, doctors and scientists across Europe and acting as a facilitator for education and communication, fundraising, research collaboration and sharing of best practices and infrastructure.

Please help us to improve the lives of people living with Fanconi Anemia by making a donation to the FA Europe Network

European FA Virtual Tumor Advisory Board (EFA VTAB).

  • Need Expert Advice? Are you a healthcare professional treating a patient with FA who has a head or neck cancer SCC diagnosis and would like expert advice?
  • Willing to share your expertise and become a member of the EFA VTAB?

Read more about the EFA VTAB – how to request advice and how to join the Board.

Register Now for the FA Europe Scientific Meeting in Gdansk, Poland, 7th and 8th May 2026!

Join us at the 3rd annual meeting of clinicians and scientists to discuss the latest treatments and research in Fanconi Anemia.  

Latest News

Countries with FA Support Groups

Key

AL AD AT BY BE BA BG HR CY CZ DK EE FI FR DE GR HU IS IE IT XK LV LI LT LU MK MT MD MC ME NL NO PL PT RO RU SM RS SK SI ES SE CH UA GB VA
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