Connecting Fanconi Anemia Patients and Professionals across Europe

Welcome to FA Europe!

FA Europe is an initiative of Fanconi Hope in the UK and the Fanconi Anemie Werkgroep of the VOKK Nederland. It is an umbrella organisation connecting patient support groups, clinicians, scientists and FA patient representatives from across Europe, whose collective voice, reach and influence should be greater than that of the individual organisations. We want all European countries to have the opportunity to be involved in the management and running of the organisation.

  • Our Vision: Equal access to optimised care for people across Europe affected by Fanconi Anemia.
  • Our Mission: We aim to achieve this by connecting FA patients, doctors and scientists across Europe and acting as a facilitator for education and communication, fundraising, research collaboration and sharing of best practices and infrastructure.

Please help us to improve the lives of people living with Fanconi Anemia by making a donation to the FA Europe Network

European FA Virtual Tumor Advisory Board (EFA VTAB).

  • Need Expert Advice? If you are a healthcare professional treating a patient with FA who has a head or neck cancer SCC diagnosis and you would like expert advice.
  • Willing to share your expertise and become a member of the EFA VTAB?

Read more about the EFA VTAB – how to request advice and how to join the Board.

FA Europe Scientific Meeting 2025

Read about the FA Europe Scientific Meeting at the Gaslini Academy in Genoa 22/5 – 23/5 2025.

Latest News

FA Europe Scientific Meeting – Gdansk May 7-8, 2026

Registration for this event will start towards the end of January 2026!  The event will be held at the Medical University of Gdansk over 2 days – Thursday 7th and Friday 8th May 2026, with an evening welcome dinner on the evening of Wednesday 6th May. Accommodation and evening meals will be in the Old

Read More »

Virtual Tumor Advisory Board Open Meeting Jan 27th 2026

If you are involved in head and neck cancer treatment, you are welcome to participate in an online presentation and discussion session on the role of radiotherapy in Fanconi Anaemia. Building on the momentum of recent discussions in the regular Fanconi Anaemia Virtual Tumor Advisory Board (VTAB) meetings, Fanconi Anaemia Europe (FA Europe) would like

Read More »

Countries with FA Support Groups

Key

AL AD AT BY BE BA BG HR CY CZ DK EE FI FR DE GR HU IS IE IT XK LV LI LT LU MK MT MD MC ME NL NO PL PT RO RU SM RS SK SI ES SE CH UA GB VA
Scroll to Top

Sign-up for Updates

Join our mailing list and we’ll keep you updated with our work, special events and ways in which you can make a difference. Your email will not be shared.