Connecting Fanconi Anemia Patients and Professionals across Europe

Welcome to FA Europe!

FA Europe is an initiative of Fanconi Hope in the UK and the Fanconi Anemie Werkgroep of the VOKK Nederland, supported by the US-based Fanconi Anemia Research Fund.

FA Europe is an umbrella organisation connecting patient support groups, clinicians, scientists and FA patient representatives from across Europe, whose collective voice, reach and influence should be greater than that of the individual organisations. We want all European countries to have the opportunity to be involved in the management and running of the organisation.

Our Vision: Equal access to optimised care for people across Europe affected by Fanconi Anemia.

Our Mission: We aim to achieve this by connecting FA patients, doctors and scientists across Europe and acting as a facilitator for education and communication, fundraising, research collaboration and sharing of best practices and infrastructure.

 

The start-up meeting for FA Europe was held online  on 4th September 2020, with representation from 9 European countries: Denmark, France, Germany, Italy, Netherlands, Portugal, Spain, UK and Norway. 

The purpose of the meeting was to agree what we want to achieve (the vision), and how we intend to reach our goals (the mission).  It also set plans in motion for specific activities in priority areas that should ultimately lead to better access to optimised care for people with FA across Europe. More information about the meeting will be published shortly.

Here is a short summary video to give you a flavour of the meeting.

The first face-to-face meeting of Patient Support Group Representatives was held in Madrid on  November 4th 2022 after 2 years of regular online meetings. See more in the post below.

 

Latest News

FA Europe Scientific Meeting Presentations

You can now download the Agenda and most presentations from the FA Europe Scientific Meeting in Paris on May 24th 2024 by going to the Event Reports Page. Here is Professor Eliane Gluckman giving the keynote address – a Historical Perspective in Fanconi Anaemia.

Read More »

FA Europe Newsletter: January 2021

We are excited to announce the launch of our very own FA Europe newsletter! With the newsletter you’ll be able to stay up to date with the latest developments surrounding the organisation and more. Please feel free to subscribe to ensure you always have the latest newsletter to stay updated. You can always unsubscribe. To

Read More »

Countries with FA Support Groups

Key

AL AD AT BY BE BA BG HR CY CZ DK EE FI FR DE GR HU IS IE IT XK LV LI LT LU MK MT MD MC ME NL NO PL PT RO RU SM RS SK SI ES SE CH UA GB VA
Scroll to Top

Sign-up for Updates

Join our mailing list and we’ll keep you updated with our work, special events and ways in which you can make a difference. Your email will not be shared.

Get In Touch with Us

Subscribe me to the News Letter
All information and services are free, and your information is kept confidential.