Event Reports

This page contains details of events, webinars and meetings arranged by FA Europe.
FA Europe Scientific Meeting, Paris, May 24th 2024

On May 24th the FA Europe Network held the first ever pan-European scientific meeting to promote collaboration on Fanconi Anemia between European countries. This was the culmination of efforts initiated by Fanconi Hope and the Dutch FA Support Group (the Workgroup of the VKN) with the help of an International grant and strong support from the Fanconi Cancer Foundation, which resulted in the establishment of the FA Europe Network in 2019.

The highly successful event was held at the Saint-Louis Hospital in Paris, a venue of great significance since the world’s first successful human umbilical cord blood transplant was carried out there in 1988.
We were delighted to have Prof Eliane Gluckman, who undertook that first transplant, as our keynote speaker for our event. We were also pleased to have Dr Isis Sroka, the Chief Scientific Officer from the Fanconi Cancer Foundation in the US at the meeting to give the US perspective and to ensure that US and European efforts are fully coordinated.

92 clinicians, scientists and patient support group representatives from 12 countries came together to discuss how to work more closely together in pursuit of our common vision of achieving equal access to optimized care for people across Europe affected by Fanconi Anemia. What was particularly significant was that there were a number of clinicians and scientists present working in areas of direct relevance to FA but who have not previously been involved with FA itself. Also notable was the presence of some younger clinicians and scientists who we hope will now be inspired to work in the field of FA in the long term.

The event was funded through donations from many of the Patient Support Groups and with the support of the French Reference Centre for Aplastic/Fanconi Anemia at the Saint-Louis Hospital.

 

 

 

FA Europe Webinar: 9th April 2021 – Toward improved management of head and neck cancer in Fanconi Anemia patients. Meeting Chair: Prof Ruud Brakenhoff, Co-chair: Prof Remco de Bree

The aim of this meeting was to set the stage for optimal treatment of head and neck cancer and precancer in FA patients in the context of international guidelines for head and neck cancer management, and to develop a roadmap for improved care in the future.

The meeting was recorded and is available in 3 parts; one for each theme and a summary version that showcases the roadmaps mentioned during the webinar.

FA Europe ENT Webinar Summary 2021

 

FA Europe ENT Webinar: Treatment of head and neck cancer

 
 

FA Europe ENT Webinar: Clinical management of precancerous mucosal lesions in the head and neck

 
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